As I began thinking of this topic, I knew I had to ask Linda. To me, she is a quiet warrior. She loves her husband and family well. There are things she faces that often times, heaven is the only one to hear of it. One Sunday, I was able to sit next to her during worship, and I opened my eyes, I can’t remember why, but I’m glad I did. I saw Linda with her hands raised. She was worshipping with her whole heart. She probably hates that I’m writing this, but time and time again, I have been challenged by her faith. I have also been lifted back up through her encouragement. This post was a challenge for her. After reading it, I know you will understand why. However, I could not hold back the tears after I read it. We serve an amazing God, and He truly is worthy of every breath we are given. Thank you, Linda, for being an amazing sister, friend, and encourager.
I don’t want to remember. I don’t want to look back. It still hurts, the tears might come back.
I remember that night. Everything was quiet and dark: a few footsteps in the hall and sleep nowhere to be found. I had asked the nurse earlier what all the numbers meant. I needed to know which ones were important and which ones were not. 93. Her coloring was good. She finally calmed down. 92. She looks so peaceful. When is that tech coming back? 91. Has it been 4 hours yet? Wonder what they can give her next. 90. That nurse told me she would check on her. Where is she? 89. Do I dare leave and get the nurse? What if she needs me?
I left and got the nurse. They came and gave my baby some oxygen to get her levels back up to a safe range. They never reached 100 but at least she was getting what she needed.
The next 2 years were spent with daily breathing treatments, ER visits, and weekly doctors’ appointments. Some days I lived in 4-hour windows. Treatment to treatment, praying she would make it and not need to go to the ER. I blamed myself. Maybe I ate wrong, maybe my house was too dirty, maybe there was more I could do. I feared losing her. I feared that it would be my fault.
During those times, I cried out to God. My hands were in fists, ready to fight the next asthma attack. But over time, I learned you can’t get oxygen into your lungs when you panic and hyperventilate. I also learned you can’t accept God’s gifts with clenched hands. I learned to let go. I let my heart tearfully worship that we had another round of medicine available to us even when healing didn’t come. I learned to enjoy THIS one and only day because tomorrow was never promised.
When the dark nights came and my daughter would be fearful, we memorized “For God has not given us a spirit of fear, but of power (Make a muscle), love (cross your arms over your chest) and a sound mind (point to your head)” 2 Timothy 1:7 I had to take this to heart as well because so many days I was crumbling inside. My faith in God grew stronger in this season. I came to realize God loves my little girl so much more than I can fathom. He has numbered her days. My job is to care for her until His plans take her elsewhere. Peace came in trusting Him.
Amazingly, 2 years after she was diagnosed, we go the OK to take her off all medicines. I was excited but nervous. We had a family trip planned to out of the country. 2 weeks would be fine, I thought, but packed all her medicines and machine just in case. A few days into our trip and I knew she was struggling. I pulled out everything and got her set up. I flipped the switch on and the machine started smoking and quit working. The adapter we brought failed. In a moment where time freezes, I just prayed. “Lord where in the world do we find a doctor to order a machine in this country we don’t belong to without insurance? And in enough time before she is in a full blown attack?”
I got my husband and he headed off to find a pharmacy. I did something I had never done before. I crawled into bed with my daughter and opened my Bible. The only thing I could remember was Psalm 139. Instead of reading it normally, I added my daughter’s name. I told her these were written for her.
“Oh Lord, you have searched Abi and know Abi. You know when she is sitting and rising up.(1)… You formed Abi’s inward parts: you covered her in Mommy’s womb. I will praise you, for Abi is fearfully and wonderfully made (13)…” We read it all. I held on to those words like I never had before. They were words of life, truth, and hope. We had just finished the passage when my husband walked in. He was back so soon, I thought it was bad news. Instead, he held out his hands, and in them was a brand new machine! Unlike the USA, with insurance, regulations, prescriptions, in this country, you could walk to the pharmacy and buy a new machine no questions asked! God’s provision blew me away.
My fear of losing her and “what if?” still pops up. But over and above those fears are the stories of God’s faithfulness. I would have never experienced His love and compassion and purpose if we hadn’t walked through the trials. I struggled to walk back to this season. I didn’t want to bring up those old fears but it reminded me of His steady hand through all of it and His eyes who see what lies ahead.
Song of the Week: Spirit of the Living God, by Vertical Church Band